The Spoon Theory written by Christine Miserandino
How it feels to live with a sickness or disability.
How it feels to live with a sickness or disability.
Succinctly summarized on the #MillionsMissing site;
Myalgic Encephalomyelitis (M.E.)* is complex multi-system disease characterized by a severe worsening of symptoms after even minimal exertion. It causes significant immune, neurological, and autonomic abnormalities. Hear from patients in their own words.
*Often called chronic fatigue syndrome (CFS) or ME/CFS.
According to the CDC;
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious, long-term illness that affects many body systems. People with ME/CFS are often not able to do their usual activities. At times, ME/CFS may confine them to bed. People with ME/CFS have severe fatigue and sleep problems. ME/CFS may get worse after people with the illness try to do as much as they want or need to do. This symptom is known as post-exertional malaise (PEM). Other symptoms can include problems with thinking and concentrating, pain, and dizziness.
According to an Institute of Medicine (IOM) report published in 2015, an estimated 836,000 to 2.5 million Americans suffer from ME/CFS, but most of them have not been diagnosed.
Unrest – 2017 Movie
When Harvard Ph.D. student Jennifer Brea is struck down by a fever that leaves her bedridden, she sets out on a virtual journey to document her story as she fights a disease that medicine forgot. wikipedia.org
And now, yet another issue; MCAD – Mast Cell Activation Disorder.
Stressing out. Perhaps if I follow this advice I can get it under control.
A post by Frank Degenaar, author of the book,“Do Way, Way More in WorkFlowy”.
My late grandmother, Florence, a sharp-minded French woman, had her own saying: “When your heart is down, carve a piece of leather”. She used to create the most intricate designs on leather, plying skillfully as she, too, worked through matters of the heart. I do the same in WorkFlowy. It’s less poetic, but it does get the job done.
I’ve outlined life-changing decisions, pinpointed causes of anxiety, given myself a kick in the pants with numerous projects both big and small and streamlined tons of workflows for way better efficiency. Outlining in WorkFlowy can and does lead to a change in perspective – be it organizational or existential – which in turn gives us the impetus to make real changes – which go beyond the realm of productivity and “busy work”.
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Haven’t you wondered what scientists learn from fruit flies?
How does my research on mate choice impact the human experience? I run into some form of this question at least once a year in the feedback I get following the annual talk that I give to fellow students. This repeated question seems to ask why I engage in what’s known as basic science. The fact of the matter is that basic science can lead to huge advancements in solving applied problems. I also don’t believe that all research should be expected to directly impact the human condition, but more on that thought later.
Scientific research can be divided in many ways, one of which is by bifurcating it into the categories of “basic” or “applied”. Applied science, as the name suggests, is…
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The best theatrical taxidermy story by a biologist!
Bank vole. Photo Credit: Soebe
Shit. I had just inadvertently ripped the tail off the little rodent I was stuffing for my final project in Mammology. In this lab course I was introduced to an interesting group of scientists, who like plenty of other biologists I met, loved animals, but with one important difference: mammologists also loved stuffing them.
I was in the middle of extracting the tail vertebrae from a tiny vole, which is like a rounder version of a mouse, when the accident happened. The thing was, I had been given this particular vole from a collection of rodents trapped as part of a research project, but supplies had run out. If I wanted a vole with an attached tail, I’d either need to go find myself another live one, or draw on the sewing skills from my second major.
In addition to my biology major, which had…
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A marvelous collection of literary 17th century cats!
‘Asses are made to bear, and so are you.’
‘I can calculate the motion of heavenly bodies, but not the madness of people.’
‘I find my familiarity with thee has bred contempt.’
‘You have sat too long here for any good you have been doing. Depart, I say, and let us have done with you. In the name of God, go!’
‘Sit there, clod-pate!’
‘There is in human nature generally more of the fool than of the wise.’
‘What goes up, must come down’.
‘Don’t I have a reason to be angry, you disobedient hags?’
‘All human evil comes from a single cause, man’s inability to sit still in a room.’
‘Silence is the virtue of a fool!’
‘I begin to smell a rat.’
‘They say everything in the world is good for something.’
‘Be frustrate all ye…
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Mental illness affects someone you know. Talking about it is the first step to normalization. This is the first in a series about my daughter’s experience.
Chandelier II, a sculpture from my art show, “The Strength in Our Scars”
Two years ago I came out: not with a revelation about my sexuality, rather an announcement about my mental health. At the point I came forward, I had been struggling with major depressive disorder for roughly a year, but things had recently gotten bad. Cutting myself bad. Fantasizing about suicide bad. In need of hospitalization bad. At that point I needed to let loose the secret I had so closely guarded.
I don’t want to abscond with the language developed by the LGBT community and simply coopt the description of the brave announcement of their true selves, but I see useful overlap in the two experiences. It is the overlap of stigmatization and fear of consequences in both processes that leads me to respectfully borrow the term.
As much support as mental illness sufferers may get from…
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