The Spoon Theory

 

The Spoon Theory written by Christine Miserandino

How it feels to live with a sickness or disability.

 

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A Constellation of Diagnoses

Info on ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue syndrome) –

Succinctly summarized on the #MillionsMissing site;

Myalgic Encephalomyelitis (M.E.)* is complex multi-system disease characterized by a severe worsening of symptoms after even minimal exertion. It causes significant immune, neurological, and autonomic abnormalities. Hear from patients in their own words.

*Often called chronic fatigue syndrome (CFS) or ME/CFS.

According to the CDC;

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious, long-term illness that affects many body systems. People with ME/CFS are often not able to do their usual activities. At times, ME/CFS may confine them to bed. People with ME/CFS have severe fatigue and sleep problems. ME/CFS may get worse after people with the illness try to do as much as they want or need to do. This symptom is known as post-exertional malaise (PEM). Other symptoms can include problems with thinking and concentrating, pain, and dizziness.

According to an Institute of Medicine (IOM) report published in 2015, an estimated 836,000 to 2.5 million Americans suffer from ME/CFS, but most of them have not been diagnosed.

Unrest – 2017 Movie

 

When Harvard Ph.D. student Jennifer Brea is struck down by a fever that leaves her bedridden, she sets out on a virtual journey to document her story as she fights a disease that medicine forgot. wikipedia.org

 

 

Scientists Edge Closer To Elusive Lab Test For Chronic Fatigue Syndrome 

 

A Guide to the Hanson Lab’s 2016 JTM Publication
Support Organizations;
The Solve ME/CFS Initiative (SMCI) has been the leading organization focused on myalgic encephalomyelitis (ME), commonly referred to as chronic fatigue syndrome (CFS), since being founded in 1987. SMCI envisions a world free of ME/CFS and works steadfastly to make this disease understood, diagnosable, and treatable. SMCI seeks to actively engage the entire ME/CFS community in research, works to accelerate the discovery of safe and effective treatments, and strives for an aggressive expansion of funding toward a cure.

 

And now, yet another issue; MCAD – Mast Cell Activation Disorder.